ELLIE, PRODUCT REVIEW TEAM
Hi! My name is Ellie. I recently graduated from Southern Illinois University where I studied Communications with a minor in Rehabilitation Services. I have had Cerebellar Ataxia since birth. My favorite product that I use is a walking stick. I use it almost daily. It is very helpful when I walk on uneven surfaces or walk in the snow. I enjoy photography, art, swimming, hiking, and going biking. I go tandem biking with my mom and just got a recumbent bike so I can bike on my own. I am starting to take classes in Photography and Art. I participated in Special Olympics for swimming, track, basketball and rhythmic gymnastics. I am excited to join this team to help people with disabilities find products that make life easier!
ERICKA, PRODUCT REVIEW TEAM
Ericka is a very proud disabled queer woman. She works as an independent living specialist in Kansas and has been a longtime member of ADAPT. Previously, she has worked at independent living centers in New York and Vermont. She has two certificates in Web Design & Motion Graphics and Pet Grooming. Ericka is a wheelchair user with the disability Spina Bifida and Hydrocephalus (fluid on the brain). In her spare time, she loves to visit new places on day trips, do puzzles and organize with other activists. She loves trying out new products that might make not only her life but others' lives easier. Right now her favorite product is a toothpaste dispenser she found on Amazon. She lives in Rochester, NY with her two adult cats but hopes to soon live with her fiancé!
HANNAH, PRODUCT REVIEW TEAM
I am Hannah, I am a member of Day Undefined. At Day Undefined, we are committed to offering products that can help anyone who needs daily living aids to cope with their environment and make their life easier and more convenient. As an Ataxia patient (Ataxia is a rare neurological disease. It is progressive and affecting a person's ability to walk, talk and use fine motor skills…), my biggest dream is to be independent one day: to reach things I want and no longer spill water & food unintentionally. My dream inspired me to be part of Day Undefined, because in Day Undefined every item is tested by someone with a physical disability to make sure they are of great assistance and support. During my free time, I enjoy spending time with my husband and my son, to play board games or watch a family movie. We live in San Francisco Bay Area.
JESSICA, PRODUCT REVIEW TEAM
My name is Jessica. I am in a wheelchair, I have a degenerative disease called Ataxia. There are are many different categories and types of Ataxia, but I have an unknown type of Spinocerebellar Ataxia. I really enjoy being creative and making things with yarn for friends, family, or anyone who seems like they could use a smile! I enjoy watching TV and movies with my boyfriend and cat. Recently I got a product called the Fur-Zoff on Amazon. It is amazing. It has helped me removed so much cat hair around my apartment.
JONI, PRODUCT REVIEW TEAM
Hi! I’m Joni. I strive to be the epitome of “Midwest Nice.” I love to create and to have outdoor adventures. Whether my next project is animation, photography, sewing, or writing—and whether my next adventure is from a manual wheelchair, a recumbent tricycle, or an all-terrain wheelchair—I refuse to let my disability control me. I have Spinocerebellar Ataxia type 3, which is a neurological disorder that primarily impacts my balance, coordination, vision (I see double), fine motor skills, speech, and swallowing. Despite my many limitations, I try to live a limitless life with my partner, our dog, and our cat. I’m a bit of a technophile, so I am always looking for new assistive technology to make our home life a little more comfortable. This is why my favorite products are Philips Hue lighting and Kasa smart plugs. Both of these products have proven to be invaluable over the years and can be easily controlled using a smartphone.
KAREN, PRODUCT REVIEW TEAM
Hello! I’m Karen. The basics: happily married 33 years, 2 adult sons, and 2 adopted dogs (now 12 & 13); retired (twice) as an Operations Manager for a giant telecom company; post 2nd retirement went on to teach middle school Special Education (loved it) until my diagnosis with SCA III around 2009. I love just learning and all things creative. My hobbies include photography, furniture & decor up-cycling, gardening, dog behavior-modification training and genealogy. An absolute favorite item I hope to review is the Aerogarden indoor hydroponic gardening unit, which makes growing anything indoors from seed, flowers to salad greens & tomatoes, a breeze! My mantras: Someone said, “I don't know how you do it." I said, “I wasn’t given a choice.” And from poet Mary Oliver, “Tell me, what is it you plan to do with your one wild and precious life?”
Kate’s older sister, Jen, has a rare disease called spinocerebellar ataxia, and while helping her shop for household products, they discovered that many of the ones that best met Jen's needs and preferences were not necessarily the ones sold as "adaptive." It was clear that a lot could (and should) be done to re-think how products are curated, focusing on their use, and user experiences, rather than their label. One of Kate and Jen's favorite wellness products is the wire scalp massager (yes, that little thing that gives a great head massage!) Most recently, Kate was a German Chancellor Fellow. Prior to that, she helped launch Perry World House at the University of Pennsylvania and was a Fulbright Public Policy Fellow in Haiti. She has a BA from the University of Pennsylvania and an MPhil from the University of Oxford. Kate loves finding products that make a real and lasting difference in people's lives.
Liam is completely immersed in the disability community. He is a board member of both Disabled in Action and the supports coordination agency Liberty Community Connections, and a longtime member of ADAPT. He currently works with the Philadelphia Department of Public Health as the Access and Functional Needs Coordinator. He previously worked as a Project Coordinator at the disability advocacy nonprofit and Center for Independent Living (CIL) Liberty Resources. He received his BA in Liberal Arts at St. John’s College and his Masters in Public Administration from the University of Pennsylvania. Liam has a rare genetic disability called Friedreich’s ataxia and uses a wheelchair and many other adaptive products. He has personally felt the indignity and discomfort in buying the things that he hopes will make his life easier and wants to make a change to bring the disability community into the 21st century. He lives in Philadelphia with his wife and two children.
LISA, PRODUCT REVIEW TEAM
MIKE, PRODUCT REVIEW TEAM
My name is Mike, and I’m a ‘retired’ financial advisor, a health and wellness advocate, and a lived-and-learned Ataxia educator who enjoys every moment of helping others unlock quality of life potential. As someone diagnosed with Ataxia when I was 28, I bring an all too familiar understanding of the asynchronous challenges that come with that. A little about myself, I was born in North Dakota, went to college in Minnesota as well as resided there for a few years, and have called CO home since 2019 after some location hopping in New Mexico and San Diego. During this time, I spent most of my professional life in the finance industry – building lifelong client relationships within a fully licensed advisory practice. Now, the answer is no; Ataxia was not why I decided to leave finance behind. It stems from career situational changes, a desire to be and do more, and an ambition to use my conditions and experiences to help others improve their lives.
RACHEL, PRODUCT REVIEW TEAM
Hi, I’m Rachel. I have a Bachelors in Public Health and I’m currently working on my Masters in Public Health at Georgia State University. My dream job is to combine Public Health with Disability Advocacy. My hobbies include rock climbing, biking, and knitting. I have Cerebral Palsy which causes me fatigue, muscular impairment, poor coordination, and speech difficulties. I am the founder and group leader of ATL ABL. ATL ABL is a social group (on Facebook) for adults with physical disabilities in Atlanta. I’m excited to be a part of the Day Undefined Team!
SARAH, PRODUCT REVIEW TEAM
Sarah is a journalist based in Minnesota. She writes stories and produces radio programs about everything from wildfires and wildlife to public schools, sickle cell disease, climate change, and housing. Previously, she worked in medical and public health research on the East Coast, and at a nonprofit in Cambodia. She has cerebral palsy, which affects her mobility and balance. She travels often and appreciates the practical solutions that make it easier to cross ice and snow-covered walkways, or to carry her camera, heavy recording gear, notebook and computer to reporting assignments.
TONY, PRODUCT REVIEW TEAM